Thankful

I would like to take some time to thank my husband Wes for being the great man that he is. When we first received our diagnosis I felt so helpless and scared. I wondered if I could ever feel like myself again. I remember my mom and my sister kept telling me how fortunate I am to have Wes for my husband. I remember thinking that the only thing that would help me to feel better would be the guarantee that my little girl will be okay. I thought, it didn't really matter who was in my life if my little girl wasn't going to survive this. Now, looking back, I realize how right my mom and sister were. How having him in my life, sticking right beside me has made a huge difference. I was becoming so consumed with doing research and choosing the right hospital for our daughter that I couldn't sleep and wasn't able to focus on anything else. He saw how overwhelmed I was feeling so he began reaching out to people on Facebook, asking questions, and making new friends. This has helped my mind slow down a bit. We have become so positive for our little girl. I know that Cemaia will feel our love for her as well as for each other and this will help her fight harder.

Also, I am very happy to announce that I got an appointment to speak with Dr Galantowicz next week. So we will have a busy week ahead of us. Monday we will be going to UCSF for our follow up echocardiogram, Wednesday we will be meeting with Dr Hanley for a consultation at Stanford and Thursday I will be speaking with Dr Galantowicz in Ohio. So we should make our final decision about where we will be going by the end of that week!!